Posted in advocacy, Emotions, Freedom, Late Night Thoughts, Peer Support, psychology, Supporting Friends/Family, Uncategorized

Mental Health And African-American LIves

There was not a Mental Health Month post on Thursday for Somatic Disorders as I anticipated, not because I ran out of time but because my mind has been engrossed in other disturbing realities and going-ons in America. I will do a post on Somatic Disorders soon. But firstly, we need to discuss something.

For all the mental health websites and advocate pages on Instagram who are American-run and have not mentioned ONE DAMN THING about the riots in Louisville, Kentucky and Minneapolis, Minnesota right now, you should be ashamed of yourselves. ASHAMED.

How dare you claim to be an advocate of mental health and not bring to light the racial issues that are not only causing MORE trauma for today’s generation of colored folks, but is fueled also by the generational trauma of our ancestors.

I am a mixed race individual; my father is African American and my mother is Caucasian. I am light skinned, often mistaken for Mexican, and my mental health and physical health has been impacted by this. Doctors are less attentive. They don’t listen properly. They accuse me of drug use in the middle of my panic attacks.

For African American people in America, there is a lot of grief. There is a lot of trauma, a lot of loss, a lot of pain. We feel unsafe, unheard, tossed aside. That births anger, rage, and perpetuates violence. With the recent murders of George Floyd and Ahmaud Abery and Breonna Taylor (George and Breonna murdered by police; George was already on the ground with three cops on top of him and Breonna was IN HER HOUSE), all of these feelings and this connection we have to each other is growing stronger. Violence is happening because of the angst of hundreds of years of BULLSHIT.

So the fact that so many pages are claiming to talk about Mental Health and are avoiding this issue for political reasons I suspect makes me sick to my stomach. Until this is addressed in all facets, nothing will change. As social media has been circulating: No Justice, No Peace.

Not only does blatantly ignoring this subject aide in the problem rather than the solution, it also sends the message that those of us in the american mental health system who are dark don’t matter as much. We don’t need to talk about this collective pain we feel right now because your page can’t afford arguments in the comments.

I say affectionately, FUCK YOU.

Get off your fucking high horse.

Remember when I said I have made very frank posts on my previous blog? This is one of them.

Get off your fucking high horse and recognize that the deaths of these people, the murders of these people, affect African-American people across this nation. My anxiety, my grief, my voices, my paranoia have all doubled because of what I see happening to the people who are part of my ancestral family. I feel the same for the Native Americans who are hit the hardest with COVID-19 and receiving absolutely no help, except a box of body bags rather than PPE. Part of my family is Native to North America and their suffering has only added to my grief.

This IS a mental health topic. Racism IS a mental health topic. Not because racism is a disorder, but because how it effects people dictates their mental states. To advocate at this time for mental health without reminding followers and subscribers that people of color are collectively struggling mentally with this, to the point that VICE has to be the one magazine to offer self-care tips for African Americans, IS SELFISH.

It’s SELFISH to ignore this as a mental health topic.

I’ve been sick to my stomach all day, lost in my thoughts and my pain and watching Minnesota burn down their police station.

If we truly are all in this together, then where is your support for the black community right now? Where is your acknowledgement of our mental health in a time when we are watching ourselves get killed? Somewhere up your ass?

Good Night.

Posted in psychology, science, Supporting Friends/Family

Mental Health Month: Gender Dysphoria

I’m hoping to write this Mental Health Month post with as much care and thoughtfulness that has been given to the other diagnostic labels we’ve covered this month. I am in severe back pain and terrified of going to Urgent Care in fear they’ll label me a drug addict. I’ve been accused of using meth by doctors in the middle of a panic attack, had my blood taken against my consent, and already had a Percocet prescription filled three or four months ago when I first injured my back. I did well, didn’t need the pills, got into physical therapy, but all of the stress and mental deterioration has set my back aflame. Severely.

I thought about postponing this post tonight because my mind is defeated. But I fear people will assume I’m giving unfair and biased treatment to Gender Dysphoria, as people who struggle with it are often treated unfairly and forgotten. My voices were having a nice time watching my suffering tonight. They told me “look at the fun we’re having!”

I’m defeated and emotionally fragile.

But tonight, we talk about Gender Dysphoria as a label and also as an experience.

There is only one diagnosis of Gender Dysphoria in the DSM (besides the unspecified/ other specified category) and that is called, well, Gender Dysphoria.

In simple terms, Gender Dysphoria occurs when someone (child or otherwise) feels their biological sex is incongruent with the gender they identify with. In children, as well as teens and adults, this must be observed for at least 6 months. Criteria includes a strong dislike of one’s sexual anatomy, a strong desire for one’s body to match one’s experienced gender, cross-dressing and insistence that one is different than what they have been told to present as.

Why Do People Argue About This?

To be honest, I have no idea. Gender is indeed a construction, whether people want to believe that or not. We, as a society, have chosen what is masculine and what is feminine. This influences every facet of our lives, from the clothes we wear, the attitudes we bare, the emotions we stuff down, our careers. It even influences how well we do in math; girls are consistently praised less and encouraged less in elementary math. This is not on purpose, it becomes an unconscious habit.

People think that biological sex is black and white; you are either male or female. Hormones in development tell a different story.

Like the rest of the students who started college the same time I did, I was plunged into the diversity of people on campus. Well–gender diversity at least. There were more people open about their sexual orientation, their preferences, their pronouns. I didn’t care, honestly, if someone who presented as John wanted to be called Caroline and wear dresses. It really doesn’t affect my life. But I didn’t understand. How could someone feel like a different gender? When I was a kid, I preferred playing in the dirt and as a teen I preferred wearing baggy jeans and getting into fights. I made out with a girl in middle school. Did that mean I was supposed to be a man? What the hell was all this transgender stuff?

From someone who has never experienced Gender Dysphoria, let me tell you: it’s impossible to imagine how it feels. At least there’s a simulator for hearing voices, that can give a non-voice-hearer insight to what it feels like and sounds like. There’s no Gender Dysphoria simulator.

The depth of my outside understanding came from my Biological Psychology course my second semester of college. Sex hormones, in fact, have trouble making up their minds sometimes. Testosterone, for example, will get busy forming the physical parts of a man while Estradiol gets charged with forming certain pathways of the brain. Depending on the pathways that get more estradiol than average for what would be a biologically male child, the brain may end up having more feminine instinct.

That’s not exactly how it happens, but you get the drift: one hormone develops more in an area of the body while the opposite develops more in the brain. This has been documented. While I couldn’t find the great sources my professor from 6 years ago had–at least not publicly available ones–I did find this review that might be interesting to you. It talks about hormones, development, and further research specific to brain sex differences.

Gender Dysphoria does indeed appear to have biological and genetic connections. What is there to argue against?

Is Gender Dysphoria a Mental Disorder?

It is, after all, in the DSM-5. In the DSM-3 it was considered “transsexualism” and in the 4th it was called “Gender Identity Disorder”. The name has been through many transformations but the fact is they still want to classify this as a medical condition. I’m not quite sure why.

I don’t see how normally developing hormones is considered a disorder. There are no malformations or diseases that result from your brain developing with more female hormones and your body developing with more male hormones. I see that those who are forced to suck back their truth in fear of condemnation, homelessness, violence, and rejection, suffer from depression, anxiety, and consistently die from suicide. That’s not a result of Gender Dysphoria. That’s a result of societal intolerance and ignorance.

Humans come out in variety. Inter-sex is more common than people think; people are born with two types of sex organs, or half of one, half of another, and you wouldn’t know who they are on the street. The internal fight that carries on with people stuck in a world that sees everything in black and white would kill the average person. People think that the rate of transgender transformations going up means the youth is being corrupted, that too many boys are being told “it’s okay wear a dress” and too many girls are being told “you don’t need to have children”. The reality is spaces are getting safer. People are coming out because they can now. People in their sixties are stepping into a freedom they’ve never had. Children are being raised to embrace their feelings rather than stuff them. Gender Dysphoria and Transgender individuals have been around for as long as your average man and woman.

Gender Dysphoria itself, in my opinion, shouldn’t be in the DSM-5. Instead, I vote for added Gender Dysphoria specifiers on things like depression and anxiety. Hiding inside of yourself can cause a lot of internal turmoil. The cause of the dysphoria, however, is not a disorder. We might as well label being human a disorder at this point.

What About The Children?

I think parents get worried when their kid is learning about all these terms, like Non-Binary, Transgender, Cis, Assexual. They worry it will “confuse” them. And I think, as with anything, there are parents who go too far. Some pull their kids out of health class if they discuss gender differences, and there are some parents who force gender neutrality on their kids. None of this seems to help the cause either of them are so passionate about.

No one cannot hammer your kid into experiencing gender dysphoria.

You cannot force your kid into being gender neutral.

You can encourage them to express their feelings.

You can let them know that if they ever feel like they want toy cars instead of barbies, or visa-versa, that it’s okay.

Children will develop into who they are regardless of what you want from them–that is a given. It’s your choice to accept them, and their level of wellness, especially in the beginning, is in some way dependent on your acceptance. As they grow older, it’s then their choice to accept your position. Are you willing to risk losing your child, metaphorically and physically, just because you think stuff like gender dysphoria is some new-age hippie shit? That’s the question I feel parents should ask themselves.

I grew up hating anything girly. I refused to wear pink, yellow, or anything bright. I ripped apart every Barbie or doll I was accidentally gifted (the gifter not knowing my anti-girl tendencies). I had a collection of hot-wheels and other model cars, and all of the toys I played with were animals mostly, who’d i’d give voices and character to. I remember my mom asking me one day whether one of the toys was a boy or a girl and I shrugged and said I didn’t know. It didn’t matter. I wore baggy clothes, got along better with boys than girls (still do) and I greeted all my friends with a fist bump or one of those “masculine” hand shakes.

The point is, NONE of this resulted in me being confused about how I identify. I am comfortable with my biological, female sex. I have a boyfriend of 5 years, and am considering children in the future. I still dress in baggy clothes sometimes, I have a resting bitch-face I’m quite proud of, and honestly I had that problem guys do with women: I used to get friend-zoned constantly with guys. It’s a horrible experience. I don’t hesitate to punch someone in self-defense, but I like to have my nails done and my make-up on point and my club dress “lit af”.

Talks about tolerance and acceptance can’t turn anyone transgender or create true dysphoria. The arguments about whether people with gender dysphoria, and people who transition, are worthy of kindness is what’s going to confuse kids.

There are so many major points to hit with Gender Dysphoria. I can’t fit them all in this post. If you have more knowledge and experience than I do, please feel free to comment below, correct me, or contact me. If you want to share your story with Gender Dysphoria, let me know. I would love to put it on this site. Although it’s talked about often these days, it’s not always talked about in the right way. We need more voices and experiences to drive home that everyone deserves respect regardless of gender identity.

As always, thank you for reading. Please send good thoughts my way. Judging by the amount of mini breakdowns I’ve been having this week, it’s going to take a lot of self-love and self-care to keep me from going back on medication.

If you want to chat elsewhere, or share your story, catch me on my social media below:

Instagram: @written_in_the_photo

Twitter: @philopsychotic

If you enjoyed this post, please share, like, and follow ThePhilosophicalPsychotic. I appreciate every reader and commentator. You give me more reason to continue encouraging critical thinking for all.

Posted in advocacy, Community, Peer Support, Supporting Friends/Family, Voices

Broken and Crippled by Mental Illness

*A featured personal story for this MENTAL HEALTH MONTH series.

Some months after my relationship with the boys’ dad ended, I had what can only be described as a ‘break down‘. And that’s exactly what it felt like because, both physically and mentally, I was broken.

Anxious About Anxiety

I started to get these odd sensations; I could feel my heart thumping out of my chest and could hear it pounding in my ears. Lots of jumbled and disturbing thoughts races around in my head and I felt scared all the time, so I was constantly jittery. I was anxious about being anxious again and much of the time I felt like I was on the world’s longest and biggest rollercoaster.

Sometimes, there was so much adrenaline buzzing through my body, my nerves were jangling, and I couldn’t sit still, so I’d pace around my home. At other times, I felt exhausted or gripped vice-like with sheer terror so I couldn’t move.

Drowning in Quicksand

I was having what I now know to be panic attacks – throughout the day and particularly at night keeping me awake until it was time to get the boys ready for school. It felt like how people explained having a heart-attack. My fingers and toes were tingling, and I could feel the colour drain from my face. I was finding it hard to catch a breath it felt like I was drowning in quicksand, so I’d lie rigid until it passed, knowing it would be followed by another, and another.

It was torturous, twenty-four-seven, week on week and with no end in sight, I wished I was dead. Although close friends and family were aware of the break-up, I couldn’t tell anyone what was going through my head, scared they’d think I was mad and that I should be locked away. This was to continue for around eighteen months.

Help was on it’s Way

I’ll be eternally grateful that our GP eventually noticed and taking me aside, he urged “Tell me, what’s the problem? You’ve lost so much weight and though you smile, I think you are very sad.” Once I’d explained and told him that I was devastated by the break-up, he was able to get me to immediate counselling. He actually drove me to our local hospital where he knew the Psychiatric Team.

Fortunately, although I had suicidal thoughts, the psychiatrist and his team were confident that I had no intention of killing myself. I’d told them I knew I couldn’t do that to my sons. I couldn’t possibly leave them with that legacy. Three years of painful weekly counselling followed.

Return to Study

I was on the road to recovery when I realised I wanted to study but I wasn’t sure I was clever enough and I wasn’t sure what to study. I thought I’d test the water and start small, so I took evening and weekend courses in Shiatsu. This was quickly followed by Swedish Massage, Seated Massage, Aromatherapy and finally, Indian Head Massage, where I was trained by the blind guy who invented it (Narendra Mehta). I loved it and so too did my family and friends who I practised on.

I had the massage table, the massage chair, lots of fluffy white towels and a full kit of aromatherapy oils. However, despite passing my exams with distinction in all the above types of massage, I just couldn’t charge anyone. I didn’t like asking for money so all I asked in return was a fluffy towel or an aromatherapy oil.

In February 1997 I learned I was about to be made redundant again, which was fantastic as I’d seen a large advert in the Evening Standard looking for General Nurses to study at my local University and Hospital. This didn’t so much interest me but, right at the bottom of the ad, there was a few lines about becoming a Mental Health Nurse. It felt right, and I believed that my own experience of mental illness would help to make me a good mental health nurse.

My Recovery

So, during my recovery from, what I learnt was, a lengthy psychotic depression, anxiety, panic attacks, and anorexia, I applied to train as a Mental Health Nurse. After three long years of study, I worked successfully as a Mental Health Nurse in various settings before becoming a Ward Manager. I had the honour of meeting thousands of people who shared their chaotic and difficult life stories with me, possibly for the first time ever. I always felt humbled by their often-fraught experiences and journeys through mental illness.

Now Physically Disabled:

I remain extremely passionate about raising mental health awareness, I’m a determined advocate of mental illness and continue to fight the stigma, the social exclusion and discrimination that come with it.

As one person I cannot change the world, but I can change the world of one person.” – Paul Shane Spear

“Think of the enormous impact if just ONE PERSON improved the world of just ONE PERSON. That alone might change the world. And everyone in the world would be part of the change.” – Samuel Rozenhider

A big THANK YOU to Caz for her willingness to share her story about moving through anxiety. Catch her at THESES LINKS:

For tips on anxiety and panic attacks, you can use my link, here: https://mentalhealthfromtheotherside.com/2020/01/17/10-quick-and-easy-coping-techniques-for-anxiety-and-panic-attacks/

Or use my home page, here: https://mentalhealthfromtheotherside.com/

My twitter feed, here: https://twitter.com/hannahsmiley

Pinterest boards, here: https://www.pinterest.co.uk/pin/800444533760600123/

Read more about today’s anxiety diagnosis and research post for Mental Health Month

Posted in advocacy, Community, Peer Support, Supporting Friends/Family, Voices

The Line Up for Sharing Your Story this Mental Health Month.

Hello friends!

I have some time before work to put out the writing schedule of this months posts, all dedicated to learning more about DSM diagnoses and the research that backs them up (or doesn’t). I’m also asking for people’s experiences so that we may add a personal aspect to all of the clinical madness.

If you want to submit your story (200 words or more), you can find my contact information on my HOME page (click here) or you can reach me on my social media handles (below).

Each post will go live on Thursday, Friday, and Saturday each week of May. The Line Up is as follows:

Week of May 4th: Anxiety Disorders, Obsessive/compulsive and related disorders, and Trauma and Stressor related disorders.

Week of May 11th: Schizophrenia, Bipolar, and Dissociative disorders.

Week of May 18th: Somatic disorders, Eating disorders, and Depressive disorders.

Week of May 25: Gender Dysphoria, Neurodevelopmental disorders, and Personality Disorders.

On Monday, May 31st, we will give a quick summary, explore feelings that may come up, and find ways we can celebrate and inform people about mental health every day, not just one month out of the year.

For submitting your story:

If you would like to present something 200 words or more, your story will be posted separately from the main article, but on the SAME DAY as your topic. For example, if you want to submit your story about anxiety, it will be posted within an hour of the main post this Thursday.

If you would like to provide a quote or small paragraph (less than 200 words) it will be included in the main post at relevant points.

For both types of submissions, I can link your blog, social media, name, or anything else that you’d like. For longer stories, if you want to write a bio, I will put it at the end of your post.

Please share this information with friends, family, and anyone you feel would want to participate. If you yourself wants to participate, please contact me.

Social Media:

Instagram: @written_in_the_photo

Twitter: @philopsychotic

Let’s empower each other and remind the world why we matter.

Posted in Peer Support, science, Supporting Friends/Family, Therapy

How To (Gently) Encourage Your Friend to Get On Medication.

Step 1:

Don’t.

It’s that simple.

Why Are We Talking About This?

There are too many questions on social media of people asking Pop-Advocacy sites and people with lived experience how they should convince their friend to get back on medication. Let’s be clear that this is often out of love, concern, pain, and desperation. If you are reading this and have a friend or loved one you believe should be on medication, don’t give up on reading this just yet. This article is not here to bash you, punish you, or guilt you. It’s here for guidance.

We’re talking about this because mental health conditions strike unexpectedly at times, roll in and out of our lives in episodes, and put stress on everyone effected. We’re talking about this because often healthy boundaries get left in the dark when we’re all under so much stress. Those of us struggling can become dependent and feel helpless, while those of us who feel responsible for the well-being of our loved-one feel guilt that we can’t make this pain go away.

We’re talking about this to make it easier on everyone.

Objective Conversation About Medication

One of the reasons pestering your loved one to get on medication is often a losing battle is because there is absolutely zero objective conversation when it comes to medication. Often it is “take this because it’s good for you” instead of “What are the benefits of you taking this? What are the consequences? What can I/we do that can help you with whatever your decision is?”

The “take it because I know what’s good for you” argument is given subtly (or sometimes overtly) in the professional setting. To come home and hear it again, aggressively or compassionately, is all it takes to send someone over the edge, or push them farther away from pharmaceuticals.

There is no consideration of what the person who actually has to take the medication feels. If they feel stable enough off the medication and people constantly tell them they should get back on to avoid the ups and down or voices or anxiety, it creates a lot of self-doubt, a lot of fear, and another sense of helplessness. That can feed depression, it can feed anxiety, it can egg on voices.

If they don’t appear stable, if they lost their job or can’t maintain one, if they are having suicidal thoughts or talking to themselves often, and they still don’t want medication, telling them they should get on some can be seen as forceful and power-hungry. When we’re in the throws of an episode or just having a bad day–those exist for everyone, you know, not necessarily indicative of a mental breakdown–anyone who approaches with concern in the form of demands or a “hero” mentality will seem like an enemy. Rather than feeling the love you have for us, we’ll only feel your disapproval. We’ll feel like something is wrong with us or we’ll feel attacked. That could feed depression, anxiety, and could exacerbate delusions.

Boundaries

This is where having boundaries comes in super handy.

The thing about watching a loved one struggle is that we put a lot of their wellness on our shoulders. The thing about their wellness is that it’s not our responsibility.

That is not meant harshly.

People have choice. They are allowed to struggle. In fact, struggle can result in life transformation. Sometimes if we’re blocked from feeling, if we’re blocked from experiencing what we should, we may not come across that one moment in our lives that tells us: “I need to make some changes“.

You are not that voice for your loved one.

And so a boundary would be limiting your involvement. Resist the urge to help them at any time, particularly if they aren’t doing much to work on themselves.

But, give them space. Make statements like “You’re doing well/unwell today. What’s changed?” and when they answer, listen objectively. Avoid judging statements like “well, if you got back on your medication this wouldn’t be such a big deal” or “look, it’s not my fault you don’t want to do anything to feel better”. Arguing will increase cortisol levels in both of you.

If you feel bullied into helping your loved one, or they often use their condition as a means to exploit your help, stop blaming this behavior on the condition. Most often this is a learned behavior and a result of learned helplessness. Being angry is often a result of feeling like a burden, feeling helpless and out of control, but that doesn’t mean you deserve to be verbally or physically attacked, nor does it mean you need to accept that treatment. Medication will often not stop this behavior.

Louder Now: MEDICATION WILL NOT STOP THIS BEHAVIOR.

And if it does, it’s only because of the sedative seffects.

And so regardless, the behavior is never addressed. Your trauma is never addressed. Your loved one can continue to be angry, feel misunderstood and undervalued, and you will continue to feel like a doormat and blame their “sickness”. It’s quite a cycle, huh?

So what DO you do?

You listen.

Understand that this is not your responsibility, nor is it your struggle.

You’re concerned, you’re worried, fearful, angry, confused. So is your loved one.

Maybe they don’t need a solution right now. Maybe they just want to feel supported and understood and heard. And it’s time to consider if you’re willing to be more of a supportive force and less of a hero.

This isn’t debate class. Having a stellar argument won’t result in discussion, it’ll result in fallout. You want discussion. Go in objectively. Go in with the conception that this is not your mind nor your body, but it is the mind and body of someone you care deeply for. Go in understanding that they have the right to choose and you have the right to your beliefs and discuss both. You may have to agree to disagree and just enjoy each other’s point of view.

If you’re really invested, research all the advantages and disadvantages of medication. Read stories of people who have been helped and hurt by medication, read stories of those who have successfully lived off of medication. Read psychology research papers (not secondary sources). If this part is confusing to you, read this.

Think of a time in your life when you made a decision or something happened which transformed your perception of yourself, the world, and the people around you. Now imagine that never happened.

Controlling someone’s choices can block transformative experiences. Life isn’t debate class.

For updates on posts, research, and conversations, follow me:

Instagram: @written_in_the_photo

Twitter: @philopsychotic

If you enjoyed this post, please share, like and follow ThePhilosophicalPsychotic. I appreciate every reader and commentator. You give me more reason to continue this joyous hobby.

Posted in Emotions, psychology, Supporting Friends/Family, Therapy

Distractions: For Better, or For Worse?

One of the popular coping mechanisms most often quoted by self-help websites, short articles, or purported “ways to help your anxiety” is distractions.

Distractions range from averting your attention to a video or a game to focusing on a particular object in the room. It can be reading, running, homework, or even social media. All of these tactics can be considered a way to remove your thought from dark, confusing, or anxiety riddled thoughts.

If you use distractions, I’d love to hear your experience with them. I will base this analysis on my experiences and the trainings I’ve participated in.

Distractions are often used in all states of frustration, but are commonly suggested for anxiety and depression. In anxiety, these are used as grounding techniques. Some distractions, like averting your attention to something in the room, is just that; you become more aware of the present, more aware of your body in the present, and less aware of the circular thoughts or racing heart rate (depending on your level of anxiety).

I have found this can be quite effective in myself, particularly when it comes down to the pre-panic state: you know, when you feel that warm, familiar wave of dread pass from your head to your toes, when your heart rate starts pumping hard, and your first thought is: here it comes. I had that moment in my old car one day. Terrified, I defaulted to what my therapist at the time suggested—look around and describe an object out loud. And so I did. By the time the light turned green, my panic had reduced over 50%.

None of the other techniques worked well for my anxiety. I found when watching a video, the voices in the videos became background noise to my own anxious circular reasonings. I couldn’t gain enough focus for reading, and any quiet activity (including meditation) only made me more aware of my racing heart. Often these distractions served to increase my anxiety.

Years ago I had taken a psychology course and learned more in depth about the executive functioning of the frontal lobe. I learned about the analytical and reasoning skills which often reside there. I also happened to be taking integral calculus at the time, and noticed a stark reduction in my anxiety while immersed in math.

You could hypothesize this was because the activity of math is very distracting; your focus is not on your thoughts or the world around you, your focus is on using the extremely helpful acronym ILATE (Integer, Logarithmic, Algebraic, Trig, Exponent) to decide how to tackle an integration by parts problem.

I tend to hypothesize that the brain activity that requires math can ease a flight/fight response. I tested my hypothesis a few times only on myself (that means, don’t take this THAT seriously, it’s an IDEA, not a FACT, and I had no control to PROVE that the brain activity required makes a difference). In my pre-panic mode, I did some calculus. Twenty minutes later I had finished my homework and forgot what I’d been so anxious about.

I didn’t just test it with calculus. I tried puzzles too, like Sudoku. It had a calming effect, but not with the same intensity. I used Algebra and easier, grade-school level math. The effect seemed equal to that of calculus. I hypothesized that something about the structure of formula, organization, and arithmetic calmed that flight/fight/panic sense more so than just the logical part of the activity (as we’d see in the solving of puzzles like Sudoku). If you’d like to read a little more about arithmetic, brain development, and implications, you can check out this study here, and browse the references too. I’d like to study this for real one day.

But for depression, this didn’t seem to be the case. I couldn’t muster the energy or the cognitive functioning required for math when depressed. In fact, I couldn’t muster either for any task and found myself lazing away, not bathing, not working, not seeing hope in a future.

Distractions for depression seemed illogical to me, even when I sat contemplating suicide. I didn’t want to put a bandaid on a broken leg, I wanted a way to fix the leg, I wanted something to snap the bone back in place so I could recover properly. Distractions never seemed to do this. Even when a distraction, like zoning out on YouTube, kept me from thinking about dying, I had to watch the videos constantly to get rid of the thoughts. And even then they’d sneak in.

Distractions for depression come from this ideal, I think, that thoughts of suicide and other painful things are inherently wrong. We shouldn’t be having them, so until we can get rid of them indefinitely, or as a way to stop you from acting of them, we put you in front of a screen or a book or the internet. Rather than encourage an exploration of the pain, we must remind you how wrong your pain is by suggesting you do everything possible to stray from it.

But if your pain is a Cougar, the last thing you want to do is turn your back and run.

And so we come to this conclusion similar to many things in psychology: both are right. Distractions can be useful until they become a life-line, until they become the only coping mechanism.

We could also safely say that there isn’t some finite list of coping mechanisms. I didn’t learn how precious math was to me until I experimented with my own inferences; a therapist would have never said, “hey, try math!”. This highlights something important about our mental health journeys, I think, and that something is: explore. There is no limit on what will or won’t help; try everything until there’s nothing else to try. And then try something else, because there’s always something else to try.

We get trapped under this idea that because something works for one person, it should work for us too. Problem is life doesn’t work like that. Distractions may save you pain. Distractions may cause you more pain. Medication may work, medication may not work. There is no perfect treatment because we understand maybe 1/6886th of the brain and its complexities. That should put you at ease, right?

If you have a particularly unique coping mechanism you’d like to share, pop it down below or find me on social media (also below).

I send updates on posts on Twitter and Instagram. I’ve also started a Writing Schedule: new posts will be on Thursday, Friday, and Saturday. If an idea can’t wait, I will post on a Sunday or a Monday (follow my Social Media accounts for that).

And as always, thank you for reading.

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Posted in advocacy, Peer Support, Supporting Friends/Family

About Mental Illness

I recently learned in a personality psychology course that the effect size in regard to how much words make a difference to people is very small. I’m currently trying to find studies which either argue for or against this, but in the meantime I decided I’d write a short blurb about it.

I’ve found nothing becoming about the term “mental illness”. It feels defaming and self-deprecating. I don’t really consider myself disordered and I’ve been ambivalent about the term schizophrenia and schizoaffective. And if I find these studies accurate, verifiable, and reliable, than I suppose none of this really matters.

I’ve been hung up on it since I was 14. In the CCMD, one of volumes, I remember reading schizophrenia was labeled as “Integration disorder” or something similar. I read a lot of books describing mental struggles as strengths, describing medication as poison, describing this idea of “illness” as bad. I agreed, and to some degree I still do.

But I’m learning to drop the words, really. It’s not about what you want to call it. Call it Schizophrenia, call it Integration disorder, call it Mental Illness, Disorder, Disease (even though there’s not enough actual scientific evidence to prove the disease part), call it whatever you want to call it because regardless we’re all talking about the same experiences. We’re all talking about the same pain, the same beauty, the same horror, the same frustration. The issue comes when people internalize the concept of illness.

The issue comes when someone loses sight of the rest of their future because they’re being told they need to take medication for the rest of their life and they can’t work, they won’t be normal, and everything has to change now–for the worst.

This is a problem because us humans are infamous for letting go of alternative possibilities when we’re provided an answer. This happens to be scientifically proven.

What I mean is, if our answer is: “take meds for the rest of your life”, our brains don’t automatically respond with “I need to find some stable ground, heal myself, and maybe find a way to not take so much medication/taper off. Or maybe I won’t. I need to explore all my options”.

When the answer is: “you’ll have this for the rest of your life”, our brains don’t automatically respond with “I may have this for the rest of my life, I also may not. What are other options?”

No, we say, shit, I have to take these meds. If I don’t, I’ll be unwell again. This is my life line.

We say, shit, I’m doomed. This has ruined my life. There’s nothing I can do.

Sometimes life experiences and therapy and friends and support forces help us see that our life isn’t ruined. Sometimes we can get off medication, and sometimes we can’t. What’s hard for me to swallow is that a lot of us don’t ever get to the point where we can consider either point of view. What’s hard for me to swallow is that when we try and advocate for each other, we do so from the perspective of “illness” instead of “wellness”.

We glamorize this idea that “I live with a mental illness and I’m doing well.” We have that weird AA group mentality of powerlessness. Studies show AA is actually quite ineffective and having been in both AA groups and Al-anon, I find them very cult-ish. I’ve also met countless people who have been saved by AA, NA, and other support groups based in “higher-power” thinking.

But essentially, if all our power comes from us being powerless, then we’re not actually powerful. We’re not anything really, but a pawn. A puppet, maybe. We let ourselves be pulled by the strings of our “disease” or disorder and we find no other avenues of compromise because we are powerless. Sometimes we feel because we made a choice to be powerless, we are empowered. Other times we argue against this adamantly, that we “manage” our illness, and “we don’t let it control us”. But the thing that all these black and white views have in common is fear. The fear, and knowledge, that we can’t control anything.

Why do we need to? That’s the question I ask everyone who presents me with this argument. Why is control even an aspect here? When you are in a healthy relationship or friendship with someone, and you have a disagreement, do you let them decide everything for you, your thoughts and feelings, because you’re powerless against them? Do you shout back and yell and scream and punch them? Hopefully not! Hopefully you don’t engage in either activity. Hopefully you engage in compromise.

When you’re in an unhealthy relationship, if someone is abusive, the partner often submits, terrified, hopeless in an uncontrollable situation. I am guilty of trying to force my thoughts and my mind into submission: I abused myself. My mind is guilty of trying to trap me in madness; my mind abused me.

But if we can engage with compromise with others, if we can strive for balance, if each person can have equal say and equal pull, if I can influence my mind and feel safe allowing my mind to influence me, then the issue of power and control is eliminated. We are free.

Is the healthy opposite of not being able to control anything absolute submission? Is the healthy opposite of powerlessness absolute power?

And so I don’t subscribe to the concept of being mentally ill. I accept that I experience moods and delusions and hallucinations indicative of what we’ve categorized as schizoaffective. But I am not a pawn. To be submissive, to feel I either need all of the control or I shouldn’t have any control, is ill to me. And so I don’t consider myself ill.

I’ve tried very hard to avoid the term “mentally ill” because of this. But hearing about these studies and their small effect size has got me wondering if any of it really matters. It’s got me wondering if the actual concept of mental illness can be looked at differently now.

It’s got me wondering if we will ever get away from this “sick not weak” hashtag.

It’s got me wondering if we will ever see ourselves as having potential for balance, for real vitality again, for health and wealth, without also having to mention the name of our disorder.

I honestly don’t care if you’re a writer with schizophrenia. I just care that you’re a writer, and a damn good one. I care about what you write. I care that you’re living well and are happy. If you have schizophrenia, great! If you don’t, great!

Let’s empower each other’s wellness, not our illness.

PS: I never said this was a site of popular opinions, or popular science.

I stray from popular for a reason. Popularity usually invalidates authenticity.

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Posted in Community, psychology, Supporting Friends/Family

The Tie Between Physical and Mental Health

In pursuing a degree in psychology, a couple depressive and psychotic episodes interrupted my original plan. In that, I’ve discovered I never really wanted a degree in psychology. In that , I discovered I’m stuck with it and must make the best out of it because starting over sounds excruciating.

And so I make this post in honor of all the adamant advocates who insist on equating mental health with physical health, despite the fact that they need very different treatments, have different levels of valid (or invalid) research, and that one is ostensibly more tangible and reliable than the other.

What’s the point?

I think sometimes when we are caught up in our head, we disconnect from the flesh and organisms which keep us breathing and conscious. Our body becomes a poorly oiled machine, and we creak and groan getting out of bed in the morning, and groan and creak getting in the bed at night. One thing which was missing from my mental health treatment in the past was a consult on my physical health.

One sleep doctor told me I needed to lose weight. That was the extent of the care given to my body after my last psychotic episode, even under the watchful eye of my psychiatrist, therapist, and physician.

And so I notice this huge disconnect in ourselves as well as in the health field. There is a reason many of us diagnosed have a higher percentage of eating highly processed foods, calorie dense foods, and refined sugar/corn syrup filled foods–it’s not just because these foods become a comfort (because they do), but also because dealing with voices and visions and mood swings take our focus away from the rest of the world, the rest of us, and without some gentle pushing and encouragement from the team around us, we’re not able to hop on the physical health track.

I did not gain one hundred pounds until my moods were so unregulated and my psychosis was so encompassing that I forgot my body even existed. This is after being a very fit, very active teenager and young adult. Medication with weight side-effects didn’t help.

What bothers me now is that doctors prescribe medications without also setting us up with a nutrition coach or a dietitian or whatever we can afford/our insurance will pay for, who can help us balance those debilitating side effects with healthier options.

I lost the weight because I was ready and because I did all the research about what foods start up metabolism, how restricting and counting calories is horrible for weight loss, and the importance of regular exercise. Within 6-8 months, I healthily lost half the weight and gained an incredible amount of mental stability for being off medication.

This has kept my depression at bay for the first time since I was eleven years old, wishing I could kill myself. I’m now 24. It has significantly reduced my anxiety, and has helped me manage paranoia. When I reintroduce a steady, less healthy diet for a couple weeks (such as a ridiculous amount of carbs, high amounts of refined sugar, and large portions), my paranoia ramps up, my panic attacks take over, and I feel miserable both physically and mentally.

Food isn’t just fuel for our bodies, it’s medicine for our minds. It keeps our blood sugars level, our energy converting, our organs functioning, and our serotonin happy–let’s not forget the abundance of serotonin that lies in our gut.

When we stuff ourselves with foods that raise our sugar levels and our dopamine levels, we crash and want more sugar. We get a lesser high each time, and a lower low each time; it’s like cocaine. The higher weight we get from fatty foods, the less movement we enjoy, and the more anxious and insecure we feel. This keeps us from experiencing the world, withdraws us from social activity, and that alone can ramp up experiences of any mental health condition.

And so pop-advocates are right: mental health and physical health should be treated the same in that both must be addressed in order for the whole person to be healthy. When we are so lost in our mind, we need something to ground us back in our physical body, and one way that can be done is relearning how to show compassion through healthy action toward our physical form.

It’s mistaken to believe what you put into your body doesn’t effect your mental health. It’s mistaken to believe that the majority of our struggle comes from chemicals; the fact is there are social factors, economic/financial factors, genetic factors, and physical factors. Some of these we have more power to change than we think, and physical factors tend to be the easiest, as hard as it is. When I stopped telling myself “well, there’s nothing I can do about it” in regards to my experiences, I found there was a whole hell of a lot I could do, not just to cope, not just to exist, but to heal and nurture all the undressed wounds I’d left bleeding for so many years. One of those wounds was my physical health.

What can we do?

It’s evident that changing eating habits is not a simple feat. It takes a lot of discipline and motivation and readiness–readiness being key. If discipline and motivation aren’t your thing, a good support team around you which you trust may work to gently encourage progress and give healthy reminders when your progress falters (because it will falter).

If you don’t have much of a support force, and your doctors aren’t much help, starting slowly will be your best bet. If you feel you aren’t ready to embark on that kind of a journey, don’t. Starting before you’re ready will only make you falter in your discipline. That will disappoint you and the discouragement will eventually convince you to quit.

So, Are you ready?

1) My first suggestion would be research. Read some stuff about food. The good stuff. Stuff about why carbs are good, why sugar is good, why certain fats actually help you burn stored fat in your body. I say start with this kind of research because it’s a reminder to you that food is good! There is nothing you need to avoid, only things eaten in moderation and with careful consideration. Things eaten for fuel, not out of emotion.

2) Next, find some foods that kickstart your metabolism. Foods like kale, spinach, raspberries, and blueberries, or spices like Tumeric. These are great pre and post workout snacks (and seasonings) that will help your body use up some of its fat storage.

3) Plan your meals. When I started my weight loss journey, I ate a kale, spinach, tofu (seasoned with tumeric) salad, topped with raspberries and blueberries for lunch. For breakfast, I ate an avocado and two boiled eggs, or two fried eggs in olive oil. For snack, I’d have a banana or protein drink, generally after a workout. For dinner I’d have a lean meat (99% lean turkey, or baked chicken, or baked fish (cod usually), a veggie, and a perhaps a cup of rice or other programmed starch/carb.

I thought I’d be hungry with this meal plan, as I was used to eating 3000-4000 calories a day easily, but I didn’t go hungry for a moment. The exercise utilized the fuel I put in my body, and the fuel properly energized my muscles and my mind. I gave up sweets only because I’d been heavily addicted and knew I’d compromise my health plan if I allowed myself to eat two cakes in three days as I had before.

4) Set a consistent workout schedule. I worked out 3-5 days a week, all around the same time. I started with bike riding again, and graduated to the gym, and eventually high interval training workouts. The thing to remember with exercise is that the more weight you lose, the toner you get, the more intense your workouts have to get in order to maintain the same loss. Starting slow can ease you into the mental and physical pain.

5) Remember your mental health. If anxiety or depression tells you not to go one day, and you really can’t convince yourself otherwise, don’t go. You still have an obligation to be compassionate with yourself. This doesn’t mean give yourself an excuse. This means accept that this day is painful and that you need rest. It means the next day may be painful too, but if your rest is productive and useful, the next day can be easier and you can return to your routine. If you take a restful week, that’s not a failure either. It’s you doing what you need.

With those five little things, I lost 56 pounds in about 6 months. My paranoia was much more under control, my blood pressure went down, my heart rate went down, my anxiety went down, and I haven’t seen my depression in almost two years.

This is not a cure. It’s an understanding that our physical health plays into our mental health, and if one is ignored, the other is sure to deteriorate.

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Posted in advocacy, science, Supporting Friends/Family, Voices

Hearing Voices: Internal versus External

Something people who don’t hear voices misunderstand about hearing voices is that it’s not like sitting next to a party of five in a restaurant where you can generally tune out all the giggles and unrelated conversation and focus on the person in front of you. It’s more like that party of five arranged their chairs around you and take turns commenting on your posture, your date’s violent sexual thoughts, your wants you didn’t know you had, while also occasionally blurting a sentence that doesn’t make any sense, like “put that burrito on reservation.”

My point here is that ignoring it isn’t always the easiest or most necessary option. And to understand why this is a fact, we need to understand a little more about this.

Some people are really obvious about their inner experiences. They’ll be talking out loud or gesturing to no one. They might be laughing or crying or whispering. This is what scares people, both people, and what can make getting acquainted with our voices such a daunting experience; we’re aware (some of us) how we appear and that judgement is enough to warrant withdrawal. This tends to make things worse.

But let’s be clear: screaming at yourself at 3am probably isn’t the best way for your roommates to get to know you, nor is it a good way to get to know your voices.

It’s kind of a novel idea, to promote the “getting to know” process of things that don’t exist. But they do exist; they speak, they can have names, we can even have images to describe their non-existent physical features. They may not exist for your little brother or your mom or dad, but they exist for you and that’s still valid.

Psychiatrists and therapists aren’t trained in helping you with this process because school will tell them not to entertain delusions and to teach their clients how to cope with voices by ignoring them. This may be helpful for the clinician so they have a reason not to feel guilty when their client doesn’t remarkably improve, but it’s not always helpful for the client.

Ignoring needs to happen sometimes. But as a primary coping mechanism it sucks.

And so there’s something called “dialoging”, which I didn’t know about until attending a hearing voices workshop put on by the Hearing Voices Network. This is essentially someone on the outside speaking with your voices, getting to know them, their motives, their personality, and validating their existence. It’s for the voice hearer as well, so they can participate in a conversation instead of a shouting match. Because, again, what happens when you shout at someone? They shout back.

It’s also a common misconception, especially in clinical practice, that everyone who hears voices hears them externally.

I read a report of an experiment which examined this. They say that external voices have always been thought to represent more “severe” psychopathology, and to be more common, but that “empirical evidence has been equivocal”, meaning ambivalent. You can read for yourself at this link.

To summarize their study:

  • Some people experience only internal (coming from inside the head) voices
  • Some people experience only external( perceived as outside the head) voices .
  • Some people experience both.
  • In 1996 it was thought external voices were more severe. This project suggests, from observations, that internal ones can be more “disturbing, negative, persistent, involving, and commanding”.
  • Voices commenting and conversing observed (reported as) more internal.
  • “…no differences have been identified between internal vs. external hallucinators in other symptoms or levels of overall psychopathology.”
  • Another study, (cited Stephane et. al 2010) “found that schizophrenia patients with only internal hallucinations performed more poorly than those with only external hallucinations on an internal ‘say/think’ source memory task, suggesting that internal hallucinators may be less able to discriminate between internal versus externalized stimuli…”
  • Those with internal voices were observed to have more insight into the self-generated nature of their voices.

Why is any of this important? Well, it’s important for clinicians to read these kinds of findings and realize that experiences vary, and that one-shot generalized treatment WILL NOT work.

But it’s also important for those of us who do hear internal voices. First of all, it’s validation. Maybe you’ve been disregarded in the mental health system because your experience is perceived as “lesser”. Remember when we talked about the Soggy Boxes and the hierarchy of the mental health system? If you don’t, take a quick read at an older post of mine entitled The Soggy Boxes and The Variation of Us.

I’ve personally been reluctant to ever tell anyone about the internal half of me, because I knew the standard the system held. I also didn’t know they were voices. I did, but I didn’t.

So all this really does is remind us how different and similar we can be with each other. It also proves that the stale mental health system needs to readjust its understanding of life, of humanity, and experience in order to catch up with where we are. They’re behind US. It’s not the other way around.

If you are struggling with this currently, I’d encourage you to reach out to someone you can trust. If you trust no one, find the person you can trust the most. If you know someone who has been through similar things, reaching out to them may be the most helpful. If your options are limited, feel free to email me (info here). People seem to like connecting on Instagram better lately, so you can also reach me via my social media handles (info below).

People are fearful because they don’t understand. The nice thing is that there are many people who will make an effort to understand if you can have the patience to teach.

If you are a voice hearer and are comfortable with sharing your experience, pop it down in the comments below. If it’s a long story and you’d like a guest blog post spot, contact me! I’d love to feature your story on here.

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Posted in advocacy, Peer Support, Supporting Friends/Family

What Makes Us So Divided?

In yesterday’s post, I mentioned that there is a divide in perspectives about mental health in our little neuro-diverse community, and this can effect how we advocate and what we educate ourselves about.

Currently, there are two major extremes, and I think each has existed since the dawn of mental health “treatment”, since we started categorizing behavior and attempting to quantify it. This divide became more noticeable after the cure-all lobotomies were deemed medically unfit, opiates for anxiety and psychosis became too addicting, and the development of Thorazine (I.e the chemical lobotomy) hit the shelves. Patients were more controllable, malleable, and more people were able to leave Asylums and enter society.

The problem with Thorazine and E.C.T, the next best treatment for depression and psychosis, was the damage they caused. No one really knew how medication worked, other than later observing a few chemicals in some people, a few others in other people, and never being able to come to a solid conclusion. We still don’t have one. E.C.T fried some people, disintegrated their personality, shredded their memory, but some were content with this because they weren’t really able to have any other feelings about it.

Drugs made money. Did I forget to mention that? A lot of it.

And eventually groups of people who felt outpatient treatments like medication, and inpatient treatments like E.C.T and solitary confinement, were inhumane, united and developed into the Anti-Psychiatry group.

Now, as time has passed, we have made mental health treatment look very pretty. Hospitals are (mostly) clean, medication is monitored more closely, and drugs like Thorazine are not as widely used in the continental U.S. I can’t speak for Europe or Canada or South America. I know Africa doesn’t have much of a choice but to use the older drugs like Haldol and Thorazine because they don’t ever get monetary assistance with anything. People are still chained to poles in the middle of psychosis in some parts of Africa.

But just because something looks pretty here in the U.S doesn’t mean it’s better. E.C.T is still popular. People say it saves their lives and maybe it does. But to send pulses of electricity through someone’s brain without fully and scientifically understanding the consequences (I.e why does it cause memory loss? Why does it effect some people’s personality?), and without fully and scientifically understanding how the depression is relieved (is it because the brain is being damaged or because their personality is so fried they could care less to be depressed?) is probably one of the least ethical ways to go about treating other humans.

The APA specifies that benefits must outweigh the risks for treatments like this to continue. I’m not convinced they do.

The same goes for medication: it’s researched (barely), results end up skewed (publication bias) and no one actually knows the long term effects for the “updated” ones.

So I understand the mistrust, the disdain, and the need for something better, something that feels compassionate and reasonable and ethical. That’s the driving force of most anti-psychiatry believers. I know because when I read Brain Disabling Treatments in Psychiatry by Peter Breggin M.D at 14, I started reading research (I had friends in college with access to databases) and was appalled. I declared myself anti-psychiatry.

The other extreme side is the medical model. Most people who believe in this model also believe that having the drugs is better than having their lives in shambles because of psychosis or mania or depression or whatever. The risks, for them, DO outweigh the benefits. Many believe that their doctors do the best they can.

They also tend to believe that our experiences are the result of chemical imbalances. They agree that these experiences are brain diseases.

Now, I have no issue with either view. Do I tend to lean toward hypothesizing our experiences are more so a variation of the human mind over hypothesizing chemicals (that have no stable baseline to be compared to) and brain deterioration causes “mental disorders”? Yes, I do. But since neither have been proven absolutely wrong, I can’t say I believe one over the other.

The issue with this division is that it impacts what and how we advocate.

When we should be advocating for whole person care and individualized approaches, we waste time convincing the world that we’re “sick” and therefore need compassion (but not too much because we don’t need pity). We don’t want people seeing our “illness” as us, but flaunt the diagnostic label and call ourselves “just the same as everyone else, but different.” When we should be empowering each other, when we should be guiding each other on how to adapt to our experiences, we waste time hating the medical model and spouting all the reasons it’s wrong.

We’re just going in circles. It’s asinine.

I don’t think we all need to ascribe to each other’s beliefs. That’s one reason why I encourage everyone to read research; when done correctly and ethically, science will tell you facts and you can dispute them, but that doesn’t change them. We can disagree on everything else. But not facts.

Now, it’s another thing when the science is wonky.

But in terms of advocacy, being on the same page is pertinent. Otherwise, we’re only impeding each other’s progress; I’ve been witness to consumers putting other consumers down because they don’t believe in diagnosis, or they do believe in diagnosis. Suddenly wanting off medication and believing that you can live a life off medication is a cardinal mental health sin. Suddenly gaining benefit from medication and feeling more comfortable on it is a cardinal mental health sin.

We need to remember that we’re all on the same side. But we also need to pay attention to facts. When we advocate, it’s not about diagnosis. It’s not about being different. It’s not about how corrupt the pharmaceutical industry is. It’s not about how psychiatrists are over-medicating and over-diagnosing. It’s not about the lack of available facilities, or sub-par care. It’s not even about our own experiences. Let me say why.

A lot of these are issues we want to address are serious issues. But they will be addressed naturally if what we present are coherent arguments and factual knowledge, all with compassionate nudging. If we prove that we are a strong, united forced, if we prove that we have insight to what we need for our mental health improvement, we can work alongside healthcare instead of against it or in spite of it. We can do things besides push medication on each other. We can do things besides convince each other medication is poison.

We can recreate the whole mental health system. And I’m sure we can all agree it needs a serious make-over.

And so I say, when you post on your site, on your social media, or when you’re giving talks, keep this in mind. Keep in mind that it’s not just about your diagnosis or labels in general. It’s about all of us. It’s about integrating into the system and becoming a part of it. If you want things to change, if you want to really be heard, if you want compassionate care for us all, that is the way to do it.

#MentalHealthAwarenessWeek just isn’t going to cut it.

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